l just need some explanation on what it is and what to do?

In the lungs, CF causes severe breathing problems. A build-up of thick mucus makes it difficult to clear bacteria & leads to cycles of infection & inflammation, which damage the delicate lung tissues.

For ur treatment, you're going to have to follow a daily routine of physical therapy to keep the lungs free of congestion & infection.

In the digestive tract, CF makes it extremely difficult to digest & absorb adequate nutrients from food.

As a result you're going to have to take a lot of pills like average 20 per day with every meal & snack, to help ur body absorb adequate nutrition from their food.

It is a genetic disorder, & in Canada It is estimated that one in every 3,600 children born have it, so you're not alone.

Wow, First do not freak out. Second, learn all you can about CF. Third do all the therapies and medications you are told to by doctors. Good luck.

http://cff.org/

It would be helpful if you could list your mutations.

First u need to find a good Pulmunologist (a doctor who specializes in lung diseases), he can help u understand & prescribe the right type of medication for this disease. You also need a nutritionist because u will need a high calorie diet with specific foods & vitamins. It is very strange that u r just now finding at the age of 16 yrs that u have CF, most of the time this is diagnosed at a young age because of its symptoms, so l would also suggest getting a second opinion if their is any doubt at all.

Do not worry, l was diagnosed at 12, & l am 25 & have 2 children, if u did not get diagnosed l 16, chances r u arent suffering from the worst of the disease, the docs say l have what u would call ''a mild case of CF'' but if u have it, u have it, it just depends on what problems u have from it, me l have the weakend immune system, which makes me vulnerable to infection, flu shots & pneumonia shots r a must, & the other problem l have is weight gain, l am estatic when l weigh anything above 100lbs, so just get with some good docs & keep up with whatever treatment plan they give u & u can get through this, & read up on it, knowledge is power, good luck with everything!!

Two months ago u stated u were pregnant. It is often difficult for a CF female to conceive. Did u find out because of ur pregnancy? How were u tested for CF?

Cystic Fibrosis is a serious health condition which is treated according to the mulit organs that may be involved. You will be evaluated for lung, sinus, liver, etc & taught how to treat ur particular case of CF. At diagnosis u should have been scheduled to see a CF clinic to set up a progam for ur care & educational purposes for u & ur family. If u have not been directed to a CF clinic u could contact the diagnosing doctor & ask for a referral or call ur local children is hospital or Medical University in ur area & ask to make a CF Clinical appt.

FYI: We have a family member who was diagosed in his 30's, he is in his 50 is now & doing fine. Relax & get information.

You can look into these sites for additional information & support.
Cystic-L Information & Support: cystic-l.org
Cystic Fibrosis Foundation: cff.org

Hope u & ur baby the best.